The Ministry of Health, in collaboration with the Clinton Health Access Initiative (CHAI), has taken a significant step towards enhancing the care and
The Ministry of Health, in collaboration with the Clinton Health Access Initiative (CHAI), has taken a significant step towards enhancing the care and management of Sickle Cell Disease (SCD) in Ghana.
A national stakeholder validation meeting has held to review and validate the Draft National Sickle Cell Disease Screening and Case Management Guidelines.
These guidelines aim to provide a comprehensive framework for early detection, diagnosis, treatment, and long-term care of SCD patients.
The Burden of Sickle Cell Disease In Ghana
Ghana records between 15,000 to 20,000 new SCD births annually, emphasizing the urgent need for strengthened prevention and care measures.
The disease is a significant public health concern, affecting a substantial proportion of the population.
In fact, one in every four carries the sickle cell gene, which translates to about 25% of the population.
Key Components of the Guidelines
The draft guidelines outline a coordinated, tiered approach to SCD care, including:
– *Newborn Screening*: Early detection of SCD through newborn screening can significantly reduce mortality rates among children under five.
– *Genetic Counselling*: Providing families with accurate information and guidance on managing the condition.
– *Hydroxyurea Therapy*: A medication that can help reduce the frequency and severity of SCD complications.
– *Management of Acute Complications*: Guidelines for managing acute crises, including pain management and blood transfusions.
– *Strong Referral and Monitoring Systems*: Ensuring patients receive continuous care and support.
Stakeholder Engagement And Validation
The validation meeting brought together stakeholders from various backgrounds to review and provide input on the guidelines.
Participants engaged in guided review sessions, group work, and plenary discussions to ensure the final guidelines are operationally feasible, globally aligned, and tailored to Ghana’s health system.
Commitment To Improving SCD Care
The Ministry of Health and the Ghana Health Service have reaffirmed their commitment to integrating and prioritizing SCD services in healthcare delivery.
The guidelines are expected to provide an evidence-based, context-specific, and equitable framework for SCD care, ensuring no patient is left behind.
This development is part of a broader effort to address SCD in Ghana.
In November 2024, the Ministry of Health launched the National Sickle Cell Disease Strategy for 2024-2028, which aims to reduce the burden of SCD by strengthening preventive and therapeutic services and promoting community education.
COMMENTS